For Researchers
OVERVIEW
Welcome to the researcher-focused page of the COMPPASS Registry. This section provides comprehensive information for researchers interested in utilizing the registry’s dataset for studies related to perinatal invasive Group B Streptococcus (iGBS) and its long-term health effects. Our goal is to foster collaborative research and drive innovation in understanding and mitigating the impacts of iGBS.
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Requests for access to the Registry Dataset will be considered from January 2026.
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ABOUT THE COMPPASS REGISTRY DATASET
The COMPPASS Registry dataset is a robust collection of data focusing on:
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Neonatal Health Outcomes: Clinical data on cases of neonatal iGBS, including sepsis, meningitis, and pneumonia.
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Neurodevelopmental Impairments (NDI): Long-term health outcomes categorized by validated domains such as motor skills, cognitive development, speech and language, and emotional regulation.
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Quality of Life Metrics: Data on family impact, child well-being, and adaptive functioning over time.
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Demographic and Environmental Factors: Comprehensive data on participant backgrounds to support equity-driven research.
The dataset is anonymized and complies with all relevant data protection regulations, including HIPAA and GDPR, ensuring the confidentiality of all participants.
KEY FEATURES OF THE DATASET
​Longitudinal Data
The registry tracks participants over time, providing rich longitudinal insights into the developmental trajectory of children affected by iGBS.
Validated Tools
Data is collected using scientifically validated surveys and assessments to ensure reliability and accuracy.
Multi-Domain Coverage
From clinical outcomes to psychosocial impacts, the dataset encompasses a wide range of variables to support diverse research inquiries.
RESEARCH OPPORTUNITIES
The dataset can support research in:
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Understanding the epidemiology of iGBS.
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Evaluating interventions to improve health outcomes.
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Investigating the social determinants of health in affected populations.
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Developing predictive models for long-term impacts of neonatal infections.
ACCESSING THE DATASET
Eligibility
Access to the dataset is open to:
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Academic researchers
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Clinicians involved in iGBS-related studies
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Public health organizations
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Industry professionals conducting relevant research
Application Process
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Submit a Proposal: Provide a detailed research proposal outlining your study objectives, methodology, and anticipated outcomes. Access Proposal Guidelines
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Ethical Review: All proposals must include evidence of approval from an Institutional Review Board (IRB) or equivalent ethics committee.
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Data Use Agreement: Researchers must sign a Data Use Agreement (DUA) ensuring compliance with all data governance policies.
Timeline
Proposals are reviewed within 4-6 weeks of submission. Approved applicants will receive access credentials to the dataset portal.
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RESOURCES FOR RESEARCHERS
Data Dictionary
Coming Soon. A comprehensive guide to the variables and structure of the dataset.
CRF Templates
Coming Soon. Standardized Case Report Forms used in data collection.
Publications
Coming Soon. Explore previous studies using the COMPPASS Registry dataset.