Resources
BE INFORMED
Welcome to the COMPPASS Registry resource page. We’re here to provide support and information to parents and caregivers of children affected by perinatal invasive Group B Streptococcus (iGBS). Below, you’ll find detailed information about neurodevelopmental impairment (NDI), developmental milestones, and the domains covered by validated surveys used in our Registry. These resources are designed to help you better understand and navigate your child’s development and care.
UNDERSTANDING NEURODEVELOPMENTAL IMPAIRMENT (NDI)
Neurodevelopmental impairments (NDI) are long-term health effects that can arise from neonatal iGBS. These impairments may impact various aspects of a child’s development, including:
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Motor Skills: Challenges with movement, coordination, and physical tasks.
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Cognitive Development: Difficulties with thinking, learning, and problem-solving.
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Speech and Language: Delays or impairments in communication abilities.
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Behavioral and Emotional Development: Struggles with self-regulation, attention, and emotional responses.
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Understanding these areas can help caregivers identify potential concerns early and seek appropriate interventions.
KEY DEVELOPMENTAL MILESTONES
Developmental milestones are behaviors or physical skills seen in infants and children as they grow. While every child develops at their own pace, monitoring milestones can help identify areas where additional support may be needed.
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The CDC has developed resources to track your child's development. For more information, click on the link below.
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​The Registry consists of validated surveys that are designed to assess developmental milestones, neurodevelopmental progress, and quality of life. The domains of child health and development covered by the surveys included in the Registry include the following:
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Physical Health​
Assesses growth patterns, motor development, and general health. Key aspects include:
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Gross and fine motor skill development.
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Physical fitness and endurance.
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Impact of medical conditions on daily activities.
Cognitive Functioning
Evaluates problem-solving skills, memory, and learning abilities. Areas of focus include:
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Attention and executive functioning.
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Processing speed and working memory.
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Academic readiness and cognitive milestones.​
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Speech and Language
Monitors communication milestones and any delays.
Key components include:
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Receptive and expressive language skills.
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Speech clarity and articulation.
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Use of gestures and non-verbal communication.
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Behavior and Emotional Regulation
Assesses attention span, self-regulation, and social behaviors.
Key areas include:
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Emotional recognition and expression.
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Coping strategies and resilience.
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Peer interactions and social skills.
Quality of Life
Measures the impact of health conditions on daily activities and well-being.
Areas of focus include:
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Family and social relationships.
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Emotional well-being and satisfaction.
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Adaptation to challenges.
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Caring for a child affected by invasive Group B Streptococcus (iGBS) can be both emotionally and physically challenging. At the COMPPASS Registry, we recognize that parents and caregivers need more than just data—they need a community, tools for daily living, and reliable information. This section offers trusted resources to support your child’s care, help you connect with others, and empower your family on this journey.
Educational Materials
More information to be added soon.
Parent and Caregiver Support Groups
More information to be added soon.